Your guide to
ENDO-MET-RIO-SIS
One in seven women+plus* live with Endometriosis.
What makes endometriosis equal parts challenging and frustrating for both sufferers and clinicians is that everyone’s experience is different. Symptoms and pain levels vary greatly between people. The amount of “disease” doesn’t equate to the amount of “symptoms” someone experiences.
Endometriosis is also ‘invisible’ from the outside, can only be diagnosed through surgery or advanced medial imaging performed by trained technicians and is often mistaken for other conditions that have similar symptoms. As a result, many women+plus are left wondering what’s going on and have a delayed diagnosis.
So, what is endo?
Endometriosis is a condition where tissue similar to that which normally lines the uterus grows in other parts of the body, usually in the pelvic cavity. With each period, as the lining is shed, this tissue, which is outside the uterus also bleeds. This bleeding causes inflammation and from this; scar tissue, cysts and adhesions are formed.
Endometriosis is a chronic inflammatory condition, that a painful, recurrent and often debilitating condition that has no cure.
What makes endometriosis challenging and frustrating is that everyone's experience is different - symptoms and pain levels vary greatly between sufferers.
Symptoms of endometriosis
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Pelvic pain
Pain that isn't relieved by ibuprofen, paracetamol, or a heat pack is not normal and shouldn't be ignored.
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Cramping and or Heavy bleeding
Severe cramping and unusually heavy bleeding during periods are not normal.
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Pain during or after bowel movements
Experiencing pain during or after bowel movements, especially around your period, is not normal.
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Fatigue
Persistent fatigue that leaves you feeling exhausted, even with rest, is a common but often overlooked symptom of endometriosis.
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Fertility concerns
Difficulty conceiving or unexplained infertility may be linked to endometriosis.
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Managing Lower Back Pain
Chronic lower back pain, especially before or during your period, can be a sign of endometriosis.
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Painful penetration or intercourse
Pain during or after penetration or intercourse is not normal. And no, you don't just need to "put up with it"...
Diagnosis
Laparoscopy (surgery)
Laparoscopy is a minimally invasive surgical procedure used to diagnose and sometimes treat conditions within the pelvic region, including endometriosis. It involves making small incisions in the abdomen and inserting a laparoscope—a thin, lighted tube with a camera—allowing the surgeon to view the reproductive organs and pelvic cavity. Laparoscopy allows for the evaluation of the extent and severity of endometriosis. This information helps guide treatment options.
Advanced Ultrasound
Advanced ultrasound, also known as transvaginal or pelvic ultrasound, is a specialised imaging technique that uses sound waves to create detailed images of the pelvic organs, including the uterus, ovaries, and surrounding structures.
This advanced ultrasound is very different to a general pelvic ultrasound.
It is critical that you visit an imaging centre with advanced trained technicians and with the latest technology and equipment.
Management & Treatment
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ManageEndo
Endo is a complex condition. Understanding your symptoms and learning how to manage those symptoms can help to improve your quality of life. Our free ManageEndo online program talks through a range of tools you can add to your "toolbox".
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Medical Treatment
Each person's treatment plan for endometriosis will be unique—it's about finding what works best for you. Common strategies include medications and surgery, but many other treatments can be combined to manage symptoms. Your approach will depend on factors like your symptoms, age, and personal goals. The first step is to have a conversation with your doctor, and there are also steps you can take on your own to support your care.
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Building your Team
Building a supportive team is key to managing endometriosis effectively. Your team might include healthcare professionals like a gynecologist, pain specialist, pelvic physiotherapist, and dietitian, as well as a trusted support network of family, friends, or peer groups. Each person plays a role in helping you navigate your treatment, understand your options, and advocate for your needs. By surrounding yourself with the right mix of expertise and support, you can create a more comprehensive approach to managing your symptoms and improving your overall well-being.
Resources
Information and Guides
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Guides for Parents
Learn about supporting your child.
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Guide for Partners
Supporting someone with endometriosis.
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Guide for your Workplace
Managing endometriosis in the workplace can be tricky, read over our community developed guide.
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Information for Schools
What should we know about the services you provide? Better descriptions result in more sales.