Hi, my name is Shannon, I’m 29 years old and currently work as an enrolled nurse in anaesthetics, which I love! I’ve also embarked on my degree in registered nursing to progress further within my healthcare career.

I was diagnosed with stage 4 deep infiltrating endometriosis and suspected adenomyosis in 2022; definitely a life-changing diagnosis that took over 10 years to receive. 

Studying full-time, working full-time whilst experiencing full-time pain definitely takes a toll on you - I wouldn’t have been able to get through the last few years without my family and friends support. I want to take my experience and use it to benefit those going through similar situations/similar diagnoses and help support others whilst working with QENDO

I love working within the theatre environment; experiencing the excision of endometriosis surgeries first hand offers me a unique position where I am able to witness these major operations and meet patients pre-operatively and hear their story, whilst also being able to support them before they embark on the surgical route.

When I’m not at work I’m in my craft room scrapbooking, making macrame or in the kitchen whipping up something new.

Online communities provide a valuable space for support and information sharing for individuals dealing with endometriosis and pelvic pain. Our Group on Facebook offers a place for members to connect, share personal experiences, and access resources.

They can be particularly helpful for those seeking understanding and advice from others who are navigating similar health challenges.

Our Community emphasises privacy, respect, and mutual support, ensuring a safe environment for all participants.

We bring the community together throughout the year to increase education, support, awareness, understanding and learning how to manage our symptoms locally.