About QENDO
Since our inauguration in August 1988 we have been committed to making a difference in the lives of those living with endometriosis.
As of 2019, we expanded that support to include those affected by adenomyosis, PCOS and infertility, due to noticing the strong link between the conditions, and having many people within our community affected by both endometriosis and adenomyosis, or PCOS.
QENDO was instrumental in championing the development of the National Action Plan for Endometriosis, launched in 2019. We continue to advise the Department of Health and Endometriosis Secretariat on the action plan and impact of our members.
QENDO provides support, education and awareness for any one affected by endometriosis, adenomyosis, PCOS or infertility across Australia and New Zealand. We have the world’s only established support line for endo, adeno, PCOS and infertilty, and offer face to face support groups, known as ‘QENDOMeets’, now expanding over 21 locations.
In 2019, we saw the launch of our PEACHY KEEN bedding and pyjama range, and all proceeds from this range go directly back into assisting us to provide our programs, resources and services. We also launched our Pilot Schools Program in 2019, visiting ten Queensland high schools. Education is important to us, and ensuring the next generation has the tools, resources and knowledge to be empowered about their health is a priority of QENDO’s.
In 2020 we launched the first FREE app for endometriosis, adenomyosis, PCOS, pelvic pain and infertility, developed by the community for the community and is currently available for download in Australia and New Zealand. With over 4,000 downloads in the first few hours, our QENDO App reached the top 10 health and fitness apps within the Australian and New Zealand App store!
In 2022 we welcomed a board of directors to QENDO, they are working hard to develop a Strategic Plan that will see us through for the next 3-5 years. With our ever growing team we are also hoping to complete a volunteer drive this year.
In April of 2022, QENDO was delighted to hear that $58million in the federal budget for 2022-2023 would go towards Endometriosis. This is the largest investment in endometriosis to date and QENDO is proud to share this with many other organisations. As a collective, we advocated and worked endlessly for this funding and look forward to seeing what can be done with the funding.
We have also developed a number of relationships and work closely with research facilities and organisations with similar values, goals and objectives to ours. We are passionate about support, education, awareness and championing research.
We are QENDO
Mission
Our mission is to support anyone affected by endometriosis, adenomyosis, PCOS or pelvic pain. We are passionate about empowering them and their support networks through support, education, awareness and championing research to ensure they feel informed, supported and able to manage their condition.
QENDO History
FIND BELOW A BOOKLET ON THE FIRST 20 YEARS OF THE ENDOMETRIOSIS ASSOCIATION (QLD) INC
Our impact
We believe that knowledge is power. QENDO has a global reach and we empower people through support, education and guidance—helping them build their very own toolbox of information.
10+
thousand Dollars Raised
To support research into genomics around the measurement of genetic markers from across the genome to determine the genetic regions associated with risk. Learn more about this research.
35+
Years Serving communities
Our work is like no other. Since August 1988, we have supported those affected through education, support programs, policy change and advocacy.
80+
Thousand australians Impacted
Through our work, we continue to positively impact the community.
Advocacy
QENDO has advocated for people affected by endometriosis since 1988.
Feedback from our members resulted in us expanding our support services in 2018 to support those affected by endometriosis, adenomyosis, PCOS, pelvic pain, infertility and painful periods.
As a founding member and key organisation responsible for the lobbying and outcomes resulting in Australia’s first Federal Health Action Plan, QENDO is proud to continue to advocate for fundamental needs our community requires to live their life.
The National Action Plan for Endometriosis is the first of its kind in Australia. QENDO acknowledges we have a long way to go but we need to start somewhere. We will continue to lobby for additional funds into services to better support patients now and research to better understand endometriosis.
We are currently working on the following advocacy campaigns. QENDO is currently working through a strategic review to prioritise pillars we aim to work on in the coming years. This will be published to our members and on the website.
Australian and New Zealand College of Anaesthetists (ANZCA) Statement Response
The recent statement by the Australian and New Zealand College of Anaesthetists (ANZCA) on pelvic pain and endometriosis has raised significant concerns within our community. As a leading organisation dedicated to supporting individuals with endometriosis, adenomyosis, PCOS, and persistent pelvic pain (PPP), QENDO is disappointed by the lack of consultation with patient groups and endometriosis organisations in developing this guideline.
SCHOOLS Education - pepp Talk program by ppfa
QENDO raised funds to bring the PEPP Talk Program pilot to Queensland. This was the first step in “testing” the program in the state. Jessica, our President has met with schools, P&C’s, MPs, Governments and other national and state bodies to join forces in brining this program to states across Australia. We continue to present at schools until PEPP Talk is funded and available to Queensland students and will continue to lobby to bring this program into all States and Territories.
endometriosis centres across australia
Access to appropriately trained surgeons, theatre time, education and support is needed to assist those with endometriosis in the diagnosis and management. Our President Jessica has been working with Federal and State governments and local health services to plan Federally recognised endometriosis centres focusing on inclusive and trauma-informed practitioners with outreach support for metro and rural areas as an action from the NAPE.
EDUCATION FOR GP’S & HEALTH PROFESSIONALS and workplaces
We’ve funded, packaged and prepared education resource packs and training for GP’s, health professionals, workplaces and other helping professions. Each year, QENDO sends over 300 resource packs to GP’s across Australia and NZ. Our packs are available to order, free of charge and can be delivered to anywhere across Australia and New Zealand. We’re also delivering health professional training and education and advocating at State levels to fund training for more nurses.
research into what is endometriosis? how does it develop? Why does it grow?
Professor Grant Montgommery has worked for 25 years to understand what endometriosis is, the genetic makeup, how it grows and interacts with the body. We believe this research is fundamental to any future treatment or the possibility of finding a cure for endometriosis. As such, we advocate, raise funds for and lobby for the work Grant and his team do.
ANZCA
We’ve been busy advocating for better care and services across Australia. Recently, we published our response to the ANZCA statement on pelvic pain and endometriosis, calling for a comprehensive approach that includes surgery and better access to specialist services.
Our mission
Our mission is to support anyone affected by endometriosis, adenomyosis, PCOS or pelvic pain. We are passionate about empowering them and their support networks through support, education, awareness and championing research to ensure they feel informed, supported and able to manage their condition.
"Volunteering for QENDO has allowed me to help empower others, the way that QENDO has empowered me. Endometriosis sucks and it is made a little bit easier knowing there is support for those like me out there. I am proud to be a part of a group of inspiring, passionate and dedicated volunteers. I am part of a team that looks out for people just like me. It's not a job, it's family."
— Kristen, Volunteer
Why I love working with
QENDO
Our history
Inaugurated in 1988, the Endometriosis Association (Qld) Inc. aimed to provide education, information and support to women affected by endometriosis in Queensland. We established the world’s only endometriosis support line and developed our face to face support groups, called ‘EndoMeets’. From our humble beginning over 30 years ago, we are now known as ‘QENDO’ and support anyone affected by endometriosis, adenomyosis, PCOS or infertility, across Australia. We have also developed a number of relationships and work closely with research facilities and organisations. Our support line is still in operation, and is available for people to use all over the world.