Your guide to Adenomyosis
Adenomyosis is a condition of the uterus (womb) where the cells similar to the lining on the inside of the uterus are also present in the muscle wall of the uterus. The person experiencing this condition suffers numerous microscopic bleeds in the muscle, during the menstrual phase of their cycle.
The symptoms of adenomyosis are often very similar to endometriosis, with heavy, painful periods being the most common. Added symptoms include referred pain to the back and down the legs, with general associated feelings of fatigue. The pain can be at least as bad as endometriosis, sometimes worse, because the patient doesn’t yet have a diagnosis.
Symptoms of Adenomyosis
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Periods
Painful or heavy periods
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Anaemia
Iron Deficiency (anaemia) due to heavy periods, which can make you feel tired or dizzy
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Fatigue
Persistent fatigue that leaves you feeling exhausted, even with rest, is a common but often overlooked.
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Fertility concerns
Difficulty falling pregnant or not falling pregnant at all.
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Painful Sex
Pain during or after penetration or intercourse is not normal. And no, you don't just need to "put up with it"...
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Persistent pelvic pain.
Pain that isn't relieved by ibuprofen, paracetamol, or a heat pack is not normal and shouldn't be ignored.
Diagnosis
Adenomyosis often takes time to diagnose.
Your doctor will talk to you about your symptoms and examine you. During the examination, they may notice your uterus is tender and enlarged.
Your doctor might recommend you have an ultrasound scan. In some cases, they may recommend magnetic resonance imaging (MRI scan).
Your doctor may also refer you to a specialist for further tests and treatment.
Management & Treatment
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ManageEndo
Understanding your symptoms and learning how to manage those symptoms can help to improve your quality of life. Our free ManageEndo online program talks through a range of tools you can add to your "toolbox".
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Medical Treatment
Each person's treatment plan for adenomyosis will be unique—it's about finding what works best for you. Common strategies include medications and surgery, but many other treatments can be combined to manage symptoms. Your approach will depend on factors like your symptoms, age, and personal goals. The first step is to have a conversation with your doctor, and there are also steps you can take on your own to support your care.
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Building your Team
Building a supportive team is key to managing endometriosis effectively. Your team might include healthcare professionals like a gynecologist, pain specialist, pelvic physiotherapist, and dietitian, as well as a trusted support network of family, friends, or peer groups. Each person plays a role in helping you navigate your treatment, understand your options, and advocate for your needs. By surrounding yourself with the right mix of expertise and support, you can create a more comprehensive approach to managing your symptoms and improving your overall well-being.