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Endometriosis, I wish I had known

Lou reflects on the concept of if only, which is something able to be understood by many within this community. Looking back on our adolescent versions of ourselves, we would have no doubt handled period pain very differently at times. However, through this blog Lou advocates for the importance of learning self-love, and caring for one’s body - reclaiming the sense of femininity again.

“As debilitating as it is, dealing with a chronic illness can be empowering. Just take your phone, open Instagram and watch. The endometriosis community is incredible! Strong advocates, standing up for themselves and helping out others. I learnt so much from reading other people's journeys and sharing mine. I would not know about excision surgery without this community.”

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Lauren Lee & Semaine Health

Lauren is the cofounder and CEO of Semaine Health and a Stage IV Endo Thriver. After decades of terrible periods (and many doses of ibuprofen), she and her twin sister and husband started Semaine with their first supplement to help people with painful periods. By living with endo, she knows first hand what it's like to feel dismissed and unseen by the medical industry. She hopes to use her empathy to help empower people with plant-based, scientific supplements that make every life stage easier and even something to be celebrated.

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My Endometriosis Journey and it’s Healing Pathways

The journey towards healing can be an arduous path, but with acceptance comes peace. After battling her monthly, crimson visitor for 26 years Sweta has finally found her release. Having battled Endometriosis for 7 years, she acknowledges that she is still on her path towards recovery as this is not something one can achieve over night, but with hope for her future.

“This is a homecoming journey. It’s been too long since we have been far away from home within. It’s time to release and let go. It’s time to discover trust and strength within yourself, taking one step at a time, at your own pace, honouring and having compassion for your life journey, just as it is.”

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Navigating Pregnancy after Loss… When it’s Not Your Own

Navigating other people’s pregnancy journeys can be an incredibly hard thing to do. The current narrative regarding miscarriage as a taboo, or something to be concealed is frustrating - and it’s time we change that. Let’s be okay with stepping back from expectations when we need to. Celebrate with those when we feel strong enough to celebrate and grieve with others when we need additional support. Loss is hard, and there is no right or wrong way of going about it.

Trigger Warning: this blog is focused upon the topic of miscarriage and loss. If you or someone you know is struggling, please call 1800 ASK QENDO.

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The Importance in Finding Your Purpose and Community

Tayla has been volunteering with QENDO since 2021, and has plans to return to University to pursue a Science-based career. Having suffered for years prior to her diagnosis, she is now a proud advocate for raising awareness for our community.

One of the key pillars driving our passionate team is the education of the younger generation, who may be suffering from pelvic pain conditions. With Endo Warriors like Tayla, we are one step closer to achieving this. QENDO is very grateful for all of her contributions.

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Can Endometriosis Impact your Relationship with Your Food and Body?

Nadia Maxwell is an Accredited Practicing Dietitian, Certified Intuitive Eating Counsellor & Credentialed Eating Disorder Clinician. She has teamed up with QENDO to navigate a complex topic, offering education and insight into the relationship dynamic between endometriosis and body image.

Content warning: this article discusses eating disorders. I encourage you to look after your wellbeing and that’s ok if that means reading no further. Eating disorder support can be found via the Butterfly Foundation National Helpline.

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Endometriosis Awareness Month: Finding Our Allies Who Champion Our Cause

Finding those who champion our cause is to find our allies. The people who come into our lives and leave their mark, healing the parts of our hearts that Endometriosis has hurt. We often speak out about the physical impact this condition leaves on our body but the emotional repercussions are important to recognise too.

Mariah speaks fondly of the person who entered her life and championed her cause. With Endometriosis Awareness Month rapidly approaching, her insight and wisdom is something to be celebrated.

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Living in a World with Endo

As a registered nurse with Endometriosis, Jordyn provides care for those who need it most. Lovingly assisting others when they need it fits her character, though throughout her own journey she has learnt to love another all too important body - her own.

Experiencing the severity of the pain that comes with this condition should not be considered ‘the norm’. Our community is lucky to have someone like Jordyn navigating the way through life, demonstrating that you can have the success of a career whilst thriving as an endo warrior.

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My Endo Story...

Watching those around you fall pregnant when you are struggling is an extremely heart wrenching thing to experience. Jess bravely shares insight into her fertility journey with Stage IV Endometriosis and her journey of loss and hope.

There is a happy ending to this story - Jess is pregnant with her rainbow miracle. QENDO thanks Jess for her raw honesty regarding such important topics for our community.

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Endometriosis: My Twenty-nine Year Endo Story

Tanya’s Endometriosis journey began when she was fourteen years old, and since then she has been diagnosed with Stage Four Deep Infiltrating Endometrioses, Irritable Bowel Syndrome, adenomyosis and fibroids! Tanya has been blessed with three, beautiful boys however she raises awareness for our community and medical gaslighting. Fertility does not necessarily mean you are exempt from gynaecological problems - and should not be dismissed as such!

I found it annoying, and it worried me that many doctors only placed value on my gynaecological concerns if it was somehow related to fertility, as though it’s okay to go through excruciating pain, missing work and life events due to my period.”

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Sparking the ‘That's Not Normal’ Period Conversation for Change

Imagine being carried out of a University lecture hall because you were rolling around on the floor in agony. For Jo, this was her reality. Knowing now that her period pain was not normal, she is thankful now that she began the journey of taking back control of her health. Her quest now is to help educate and support others living with endometriosis. Her dream - to help move others within the Endometriosis community from surviving to thriving! The QENDO community thanks Jo her for her support.

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Learning About Endometriosis

Jess Coldrey is a 2021 Victorian Government John Monash Scholar and internationally exhibited technology artist, most notably curated into exhibitions for the Australian Ian Potter Centre, Melbourne Science Gallery, and the United Nations' COP26 conference in Glasgow. From robotics and drone selfies winning her the prestigious Agendo Art Prize to her recent fashion project in Paris exploring endometriosis, her art has traversed creativity and engineering to spark new conversations about the future.

In this blog Jess shares her firsthand experience navigating endo, while also showcasing her talent as an artist. QENDO is very excited to feature Jess, grateful for the advice and wisdom she offers. She highlights the need to listen to one’s body and the importance of giving it permission to rest.

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From Brazil to Australia with Endo, by Julia

“Having been had diagnosed and now knowing the symptoms, I can look back and see some small signs of the disease in my mid twenties. These were not symptoms that impacted on my quality of life whatsoever.”

Julia bravely brings you her personal journey with endometriosis, as she shares the importance of having a diagnosis.

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My Journey of Endometriosis

Being informed there is nothing wrong is an incredibly frustrating thing to endure. Haven’t we all heard that our period pain is normal, from time to time…but it is NOT! Being diagnosed with endometriosis in the final year of schooling presented additional challenges - at an already challenging time. Chantelle bravely navigated such changes, ultimately landing her dream University course.

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Medicinal Cannabis as Part of Your Toolbox

We receive many requests about accessing support and information when considering medicinal cannabis. As such, QENDO accepted a paid partnership from NCClinics to deliver a blog post regarding their service. QENDO agrees to this opportunity as NCClinics provide a free resource for people seeking information through a help line. Individuals can talk to a specialist nurse to understand if medicinal cannabis might be an option to add to their toolbox.

This post is sponsored by NCClinics for the purpose of providing another resource for people interested in learning more about utilising medicinal cannabis to assist in their pain management. For further information about the use of medicinal cannabis, contact NCClinics nurse phone line on: 1800 978 622.

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Endometriosis is the worst club, but it does have the best members

“I’m so grateful to have discovered QENDO. I have met some amazing people and forever friends. I have learnt a lot about my condition, and it’s great to have a community of people who understand what you are going through. I have recently become a QENDO volunteer and I look forward to this new chapter, hoping to not only help raise awareness, but also to help other people who are suffering.” - Katie, one of QENDO’s amazing volunteers.

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Navigating Endometriosis as a Sex Worker

Breaking through the stigma of what endometriosis looks like within the workforce, despite whatever that workforce may be! After all, endometriosis does not discriminate…

This article touches base on sensitive topics such as pregnancy and loss.

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Learning self-love and awareness, through endometriosis

“It has been a very challenging life journey to live with endometriosis. I think you learn a lot about yourself with endometriosis, and this experience leads you to self-love and awareness. These are two traits which you can benefit from in later life, whilst you are becoming uniquely divine through the process”.

Being advised to “immediately fall pregnant”, as a solution to endometriosis is something too many of us have heard. Silvie bravely shares her account of living with this disease, and shares her hope for our future as a community of strong individuals.

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Impact and Hope: Living with Endometriosis by Erin McMahon

Through these tough times I’ve come to know that when our health is asking us to listen, we must. We spend our whole lives inside our mind and body. We must take care of them. If we don’t, eventually they will force us.

Doctors must listen.

Family must listen.

Close friends must listen.

The world must listen.

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