We receive many requests about accessing support and information when considering medicinal cannabis. As such, QENDO accepted a paid partnership from NCClinics to deliver a blog post regarding their service. QENDO agrees to this opportunity as NCClinics provide a free resource for people seeking information through a help line. Individuals can talk to a specialist nurse to understand if medicinal cannabis might be an option to add to their toolbox.

This post is sponsored by NCClinics for the purpose of providing another resource for people interested in learning more about utilising medicinal cannabis to assist in their pain management. For further information about the use of medicinal cannabis, contact NCClinics nurse phone line on: 1800 978 622.

“I’m so grateful to have discovered QENDO. I have met some amazing people and forever friends. I have learnt a lot about my condition, and it’s great to have a community of people who understand what you are going through. I have recently become a QENDO volunteer and I look forward to this new chapter, hoping to not only help raise awareness, but also to help other people who are suffering.” - Katie, one of QENDO’s amazing volunteers.

Breaking through the stigma of what endometriosis looks like within the workforce, despite whatever that workforce may be! After all, endometriosis does not discriminate…

This article touches base on sensitive topics such as pregnancy and loss.

“It has been a very challenging life journey to live with endometriosis. I think you learn a lot about yourself with endometriosis, and this experience leads you to self-love and awareness. These are two traits which you can benefit from in later life, whilst you are becoming uniquely divine through the process”.

Being advised to “immediately fall pregnant”, as a solution to endometriosis is something too many of us have heard. Silvie bravely shares her account of living with this disease, and shares her hope for our future as a community of strong individuals.

Through these tough times I’ve come to know that when our health is asking us to listen, we must. We spend our whole lives inside our mind and body. We must take care of them. If we don’t, eventually they will force us.

Doctors must listen.

Family must listen.

Close friends must listen.

The world must listen.

Here’s to all the QENDO Dads

The Step Dads

The Foster Dads

The Solo Dads

The Dads to Be

The Mums that are also Dads

The should be Dads

And those without Dads

This Father’s Day #team QENDO want to thank all Dads including our own!

I'm currently 28 years old, I was so young when I got my first period and I knew something wasn't right, from the very beginning...

My parents had never spoken to me about periods.

I had no idea what they were, who got them, what to expect, how to deal with them. Nothing.

I remember being so scared, wondering why I was bleeding.

All mum said to me was: "it's normal" and gave me some little liners.

I was so young, so she assumed that "liners" were all I needed.

My journey started from aged 11 (grade 5!) when I was blessed with my period. From such a young age we are taught that the day we start our period, is a day to be celebrated because we are finally a woman. We now know that this is not the case for majority of women who have endometriosis. From the first day of my very first period, I experienced unimaginable pain (this is just normal though right, period cramps) heavy bleeding and the feeling of shame – for being ungrateful and wishing the gift of being able to reproduce, be taken away.

Megan Dunkley started experiencing painful periods from age 12, and was using the pill at age 14 to cope with her intense pain, nausea and heavy bleeding. Nine years later, after finally receiving an endometriosis diagnosis, Megan is committed to raising awareness and empowering others to learn more about the disease. She is proud to stand up for others with endometriosis and pelvic pain, and share her story to raise awareness.

Danielle Halcrow, an endo warrior from New Zealand, started experiencing the symptoms of endometriosis at 16, but wasn’t diagnosed until the age of 20, experiencing a lot of doubt and dismissal during this time. When she was finally diagnosed, she was able to have surgery and receive treatment to help with her debilitating symptoms. In this blog Danielle shares her endometriosis story, the validation of a diagnosis - even when it means knowing that you have a currently incurable illness, and the benefits of engaging a mental health professional as part of your toolkit.

One of the first things many of us learnt when becoming “endo aware” was that ultrasound cannot rule out endometriosis, and that a scan is not a substitute for the gold standard - a diagnostic laparoscopy by an experienced excision specialist. Imaging technology has come a long way in recent years, particularly transvaginal ultrasound, and in the right hands it can actually prove itself a useful tool in the diagnosis and management of endometriosis and adenomyosis. So what is the role of this scan? What can it see, what can it tell us, and can we in fact diagnose endometriosis on a scan? In this blog our support coordinator and RN Dannielle takes us through the literature and the role of the specialist scanner. Let’s talk about ultrasounds.

“I’m lying in bed, one heat pack held against my abdomen, the other behind my back. I’ve taken Ibuprofen and Panadeine Forte but neither have changed the pain. I’m crying. Frustrated. Exhausted”. It’s a scenario many among us will find all too familiar, a pain that ties millions of us together around the world. This Is Endo. On the blog today we hear from Alice Ayling, who first started experiencing symptoms in adolescence but waited an astonishing seventeen years to have this diagnosis confirmed, despite a laparoscopy at 18 where the surgeon didn’t find any disease. Alice shares her path to a diagnosis, excision and, eventually, motherhood, all while coping with the debilitating symptoms that characterise endometriosis.

If anyone understands the importance of empowering others and smashing stigmas, it’s Katie Norbury. Katie is the founder of Get Papped, a community designed to start conversations outside the medical setting about cervical screenings. Cervical screenings, like endo, aren’t often talked about, often spoken about in hushed tones in private, but we know they’re so important, and we need to talk about them. In this blog Katie takes us through the ins and outs of screening, and talks about the experience that inspired her to start Get Papped.

For those affected by endometriosis, adenomyosis or PCOS, fertility is often something in the back of our minds, even when we’re not trying to conceive. When we decide to start trying, the landscape is so often new and confusing, trying to navigate not only our chronic illness, but all the components of a fertility journey. Renee Owen always had a gut feeling her journey to motherhood would not be a simple one, and this proved correct when she was diagnosed with PCOS. In this blog Renee shares her fertility story and journey to motherhood, as well as her struggles on the road to baby number two. She shares her story in the hopes of being a strength and support to others in the TTC community. CW: this blog deals with infertility and pregnancy loss.

If there’s anyone that understands the power of sharing your story to reassure, inspire, or support others, it’s founder of Got You Girl, Sophie Stewart. Got You Girl aims to inspire, educate and start the conversation around taboo topics like endometriosis, periods, mental health and domestic violence (to name just a few). It’s also an incredible source of information on a variety of topics, all in the one spot. QENDO is excited to host Sophie on our blog, a space where we too strive to share the stories, resources and carefully curated content you need. In this blog Sophie talks about the magic of sharing your story, and the importance of platforms like QENDO and Got You Girl to create space for voices to be heard.

At QENDO this Mother’s Day we are celebrating Mums of all varieties: from our own mothers who fought alongside us as we tried desperately to get our diagnoses, to those of us who have become Mums ourselves, sometimes after years of trying. We also celebrate those still on their fertility journeys, those who have lost children, those who have lost their mothers, those Mums growing their families. We see you, this day is for you too, and send our love and support to those who may find this day hard. In this blog, Amanda Burgess shares her experience of being a Mum while also contending with stage four endometriosis. We thank Amanda for taking the time to share her story so honestly, in a way that so many of us with endometriosis can relate to.

Endometriosis Awareness Month saw organisations like QENDO leading a national conversation around endometriosis awareness, diagnosis and treatment, with more attention than ever before focused on this condition that affects 1 in 10. But there’s another conversation that we still need to have at the national level, and that QENDO is committed to facilitating; and that’s about endometriosis and mental health. Hannah Davies is helping to do just that, and in this incredible feature article she talks with Belle Grech and QENDO’s own Isabella Gosling about the experience of endometriosis, how it can impact mental health, and what the road forward looks like for those affected.

Nutrition and diet can play an essential role in the management of endometriosis. While there is no one evidence-based “endo diet” that works for everyone, especially given the varied symptoms we all experience, there are a number of strategies that we can put in place to support overall wellbeing and symptom management. Working with a dietitian with an interest in reproductive health is a great place to start, which is why we’re excited to welcome Rhiannon Stone, an accredited practising dietitian from Balance Nutrition, to the blog to talk about the role of resistant starches for endometriosis.

Did you know that a pelvic physiotherapist can be a key member of your adenomyosis team? For many pelvic physio can make a life-changing difference in the management of persistent pelvic pain associated with adenomyosis, helping them to make strides in improving their pain and quality of life. Rachel Fitt is a Melbourne based pelvic floor and continence physiotherapist, and co-host of the Listen Up Ladies podcast. Rachel is passionate about all things pelvic health and empowering her clients to achieve their goals throughout the lifespan. To close April for Adeno, Rachel takes us through adenomyosis, persistent pelvic pain, and the role of pelvic physiotherapy in managing these symptoms.

As we come towards the end of Adenomyosis Awareness Month, it’s important we continue to use the awareness and momentum we have gathered during this month to continue advocating for those affected by this condition. Like QENDO, Caitlin McDonough is committed to adeno awareness and advocacy. Caitlin is founder of The Adeno Project, an online space committed to sharing accurate information on all things adenomyosis, as well as dispelling the many myths surrounding the illness. Through this work Caitlin aims to destigmatize pelvic pain and launch a toolkit for others to utilise for education and support. Though based in the USA, The Adeno Project has become a familiar online friend for many of us in the adenomyosis community worldwide, and at QENDO we’re so excited to bring you this blog from Caitlin for the end of April for Adeno.