Supporting Australian’s with
Endometriosis
since 1988
How can we help you?
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Recently diagnosed or thinking what your experience isn't quite "normal"? Learn about symptoms, diagnosis, management and resources here.
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When your child is diagnosed with a chronic illness like endometriosis, it can be a time of overwhelming emotion, uncertainty, and questions. As a parent, you naturally want to provide support and do everything you can to help them manage their health and well-being. However, navigating this new reality can be challenging—not only for your child but for you and your family as well.
This guide will walk you through what to expect, how to offer meaningful support, and how to help your child manage the physical, emotional, and social impacts of chronic illness.
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Discussing fertility and endometriosis with your partner can be challenging yet essential for nurturing your relationship during this journey. Open communication fosters understanding, support, and emotional connection, helping both partners navigate the complexities of managing symptoms and fertility concerns. This section provides guidance on how to engage in these important conversations, ensuring that both you and your partner feel heard and supported as you work together to address the challenges ahead.
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Our support eco-system is here to help your patients build their community and toolbox. Learn more about and order your free national resources for your patients here.
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Managing a chronic condition while working can be challenging. Depending on the severity of your symptoms, you may need to make adjustments to your work schedule, tasks, or environment. Open communication with your employer is crucial to ensuring that you can balance your health needs with your professional responsibilities.
Looking to connect locally? Find your local connected community!
Looking to connect locally? Find your local connected community!
Services & Programs
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Mentor Program
The aim of the Program is to help you, by giving you someone to talk to & to connect with, so you don't feel so alone, whilst also giving you practical strategies & ideas to add to your toolkit, leaving you feeling empowered & in control.
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QENDO App
The free endometriosis, adenomyosis, PCOS, pelvic pain and infertility app
developed by the community, for the community. -
Manage Endo
Your self-paced online course to learn about symptom management and building your toolbox.
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Help Line
Our support line is your listening ear to talk through any concerns or questions you might have. Call us today.
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Workplace Programs
We understand the need for balance between education, awareness and action. Our program and supporting services enable the workforce, leaders and employees to start the conversation and build on their impact as their pace.
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Advocacy
As a founding member and key organisation responsible for the lobbying and outcomes resulting in Australia’s first Federal Health Action Plan, QENDO is proud to continue to advocate for fundamental needs our community requires to live their life.
There is power in your story…
Information Hub
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Endometriosis
Learn about signs, symptoms, diagnosis, management of endometriosis. This page is full of guides, resources for parents, partners, schools and workplaces.
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Adenomyosis
Explore the signs, symptoms, diagnosis, and management of adenomyosis. This page offers a variety of guides and resources for parents, partners, schools, and workplaces.
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PCOS
Discover the signs, symptoms, diagnosis, and management of PCOS (Polycystic Ovary Syndrome). This page provides comprehensive guides and resources for parents, partners, schools, and workplaces.
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Pelvic Pain
1 in 5 people live with persistent pelvic pain. Persistent pelvic pain is a diagnosis in itself! Learn about your pelvic pain symptoms and how to build your tools to support your pain.
36 YEARS OF EXPERIENCE
We’re stronger together.
Established in 1988, QENDO advocates for those affected by endometriosis and other pelvic health related conditions across Australia and New Zealand. Our work assists in advising and advocating for improved services and quality of life for our members.
QENDO is a peak organisation for those affected by endometriosis, adenomyosis, PCOS, infertility or pelvic pain, by lobbying for national programs, better healthcare access, support, offering them the tools, services and programs to understand and take control of their health.
We’re here to support you.
Our impact
We believe that knowledge is power. QENDO has a global reach and we empower people through support, education and guidance—helping them build their very own toolbox of information.
10+
thousand Dollars Raised
To support research into genomics around the measurement of genetic markers from across the genome to determine the genetic regions associated with risk. Learn more about this research.
35+
Years Serving communities
Our work is like no other. Since August 1988, we have supported those affected through education, support programs, policy change and advocacy.
80+
Thousand australians Impacted
Through our work, we continue to positively impact the community.
Our Partners & Supporters
ACKNOWLEDGEMENTS
QENDO is committed to honouring Australian Aboriginal and Torres Strait Islander peoples’ unique cultural and spiritual relationships to the land, waters and seas and their rich contribution to society. We acknowledge the Traditional Owners of the land where we volunteer, work and live. We pay our respects to Elders past, present and emerging. We celebrate the stories, culture and traditions of Aboriginal and Torres Strait Islander Elders of all communities who also work and live on this land.
We also like to acknowledge the many the leaders, tribes, people, organisations and advocates who have spoken about the issues and topics we face today, for decades. The work we are doing here builds on their legacy, their dedication and their advocacy that has preceded us.
QENDO acknowledges the diversity across the endometriosis community and whilst we have considered the terminology used across our online presence and in updated printed content, we may not have used the right description that aligns with you. We acknowledge that identity is a complex and ongoing conversation.
QENDO acknowledges individuals in the transgender community and people who are non-binary and living with endometriosis who may not identify as women.
If you come across content on our website where consideration of inclusive language requires attention, please contact us. We too are learning and would welcome your guidance and feedback.
Endometriosis can profoundly affect an individual's capacity to work, often resulting in chronic pain, fatigue, and various other symptoms. These challenges may lead to reduced productivity, higher absenteeism, and difficulties with concentration.