Advocacy
QENDO has advocated for people affected by endometriosis since 1988.
Feedback from our members resulted in us expanding our support services in 2018 to support those affected by endometriosis, adenomyosis, PCOS, pelvic pain, infertility and painful periods.
As a founding member and key organisation responsible for the lobbying and outcomes resulting in Australia’s first Federal Health Action Plan, QENDO is proud to continue to advocate for fundamental needs our community requires to live their life.
The National Action Plan for Endometriosis is the first of its kind in Australia. QENDO acknowledges we have a long way to go but we need to start somewhere. We will continue to lobby for additional funds into services to better support patients now and research to better understand endometriosis.
We are currently working on the following advocacy campaigns. QENDO is currently working through a strategic review to prioritise pillars we aim to work on in the coming years. This will be published to our members and on the website.
Australian and New Zealand College of Anaesthetists (ANZCA) Statement Response
The recent statement by the Australian and New Zealand College of Anaesthetists (ANZCA) on pelvic pain and endometriosis has raised significant concerns within our community. As a leading organisation dedicated to supporting individuals with endometriosis, adenomyosis, PCOS, and persistent pelvic pain (PPP), QENDO is disappointed by the lack of consultation with patient groups and endometriosis organisations in developing this guideline.
SCHOOLS Education - pepp Talk program by ppfa
QENDO raised funds to bring the PEPP Talk Program pilot to Queensland. This was the first step in “testing” the program in the state. Jessica, our President has met with schools, P&C’s, MPs, Governments and other national and state bodies to join forces in brining this program to states across Australia. We continue to present at schools until PEPP Talk is funded and available to Queensland students and will continue to lobby to bring this program into all States and Territories.
endometriosis centres across australia
Access to appropriately trained surgeons, theatre time, education and support is needed to assist those with endometriosis in the diagnosis and management. Our President Jessica has been working with Federal and State governments and local health services to plan Federally recognised endometriosis centres focusing on inclusive and trauma-informed practitioners with outreach support for metro and rural areas as an action from the NAPE.
EDUCATION FOR GP’S & HEALTH PROFESSIONALS and workplaces
We’ve funded, packaged and prepared education resource packs and training for GP’s, health professionals, workplaces and other helping professions. Each year, QENDO sends over 300 resource packs to GP’s across Australia and NZ. Our packs are available to order, free of charge and can be delivered to anywhere across Australia and New Zealand. We’re also delivering health professional training and education and advocating at State levels to fund training for more nurses.
research into what is endometriosis? how does it develop? Why does it grow?
Professor Grant Montgommery has worked for 25 years to understand what endometriosis is, the genetic makeup, how it grows and interacts with the body. We believe this research is fundamental to any future treatment or the possibility of finding a cure for endometriosis. As such, we advocate, raise funds for and lobby for the work Grant and his team do.
ANZCA
We’ve been busy advocating for better care and services across Australia. Recently, we published our response to the ANZCA statement on pelvic pain and endometriosis, calling for a comprehensive approach that includes surgery and better access to specialist services.